Patient Advisory Working Group
Provides patient perspectives that help ensure ETC clinical initiatives remain patient-centered, meaningful, and responsive to the needs of individuals with lived experience.
Mission & Purpose
The Patient Advisory Working Group ensures that the perspectives of individuals with lived experience remain central to the development, implementation, evaluation, and dissemination of ETC initiatives. Comprised of individuals who have received exposure therapy, as well as those considering treatment, the Working Group provides ongoing guidance to help ensure that ETC activities are relevant, acceptable, feasible, and responsive to patient priorities.
By integrating patient perspectives throughout the lifecycle of clinical initiatives, the Working Group strengthens the quality, impact, and real-world relevance of the ETC while promoting meaningful partnerships between patients, clinicians, researchers, educators, and other stakeholders.
Goals
Ensure patient perspectives inform ETC clinical initiatives
Incorporate the experiences and priorities of individuals with lived experience throughout the planning, implementation, evaluation, and dissemination of ETC initiatives.
1
2
Promote patient-centered and accessible practices
Provide guidance that enhances the relevance, accessibility, feasibility, and acceptability of educational resources, implementation efforts, communication strategies, and other ETC activities.
3
Strengthen partnerships between patients and ETC members
Foster meaningful collaboration among patients, clinicians, researchers, educators, and other stakeholders to identify priorities, improve clinical initiatives, and promote dissemination that is responsive to patient and family needs.
Examples of Activities
Examples of activities include:
Providing consultation and patient perspectives across ETC initiatives.
Advising on participant- and patient-facing materials, including educational resources, communication materials, recruitment materials, and informed consent documents when applicable.
Identifying opportunities to improve the accessibility, acceptability, and feasibility of ETC initiatives from a patient perspective.
Contributing to the identification and interpretation of patient-centered outcomes.
Informing communication and dissemination strategies designed for patients, families, and community partners.
Identifying emerging patient priorities that may inform future ETC initiatives and strategic planning.
Get Involved
The ETC welcomes individuals with lived experience who are interested in helping improve the delivery of exposure therapy through meaningful collaboration with clinicians, researchers, educators, and other stakeholders.
To learn more about the Patient Advisory Working Group or inquire about future membership opportunities, please contact: Jolene Jacquart, PhD at Jolene.jacquart@austin.utexas.edu